BERT2011 (Bugger, Estrogen Receptive Tumor)….

Metastic breast cancer at 38

A set back..

on July 10, 2014

Well in my last update I mentioned they were MRI’ing an anomalie in my liver that we were hoping was a blood vessel… I’m afraid this was not the case and we are now fairly certain that it’s a cancerous lesion, and as it had grown from 5mm to 10mm this indicates that my body has become accustomed to Letrozole which means that it’s effectiveness is no longer going to keep my cancer at bay… So I had a few options.. And I’ve made a decision to apply to join a clinical trial.

The trial will hopefully start in 2 weeks, it’s the Paloma 3 trial with Faslodex and a new drug which we hope will extend the longevity of the Faslodex so that my body doesn’t become accustomed too quickly.. The But in this is that I may get whats called the Placebo.. So the sugar pill and not the real drug.. There’s a 2 in 3 chance of me getting the new drug… Phase 1 and 2 trials of the drug have apparently been promising.. So it’s something I have to try.

1st step is for me to be assessed to see if they will accept me on the trial, this involves scans and blood tests and signing a contract, if accepted I’ll start in 2 weeks. The Faslodex is, unfortunately, given as injections.. In my Bum!!!.. Which anyone who knows me will be a challenge as I’m very needle phobic… But it’s something I’ll have to try to hopefully prolong my life.

There will be side effects, some similar to chemo apparently… I’m hoping no hair loss, but I need to discuss with the team next week. ..

How am I feeling??… Pretty shocked and disappointed.. I guess I thought I’d have longer on the first drug… But I refuse to wallow and feel sorry for myself..so after much googling last night and the early hours of the morning when I couldn’t sleep it’s time to kick up a gear once more and start fighting again.

Keep your fingers crossed people.. I need to get on this trial..and I need to be getting the real drug not the placebo…

Not sure what else to write tonight… Need a little more time for this to sink in…. I’m ok… Normal service will resume shortly ๐Ÿ™‚


10 responses to “A set back..

  1. I hope you get accepted (and get the real deal!). Fingers crossed for you.

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  2. Michael Spencer says:

    Hi Jane,
    Not only my fingers, but I’ve got everything else crossed for you (toes, legs etc.).

    All the very best wishes from Lancashire,
    Michael S.

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  3. Bridget says:

    Dear Jane, Great response! My Dad would approve!! Much much Love. Keep fighting (I know I dont need to tell YOU that!!) You will get the trial Im sure & the medication you need. Hang in there hunbun. We’re all thinking of you….& have a chauffeur punting tour reserved for you in Cambridge!! Love to you 3…& mum & dad. xxx Please let me know if I can do anything…no matter what! X

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  4. Paula says:

    All fingers crossed Jane – difficult to type reports but what the hell! So hope you get the right drug and not the sugar pill. Take care – thinking of you.

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  5. Christine says:

    I was so utterly sorry and disappointed to read this last set back, but am willing with all my heart that you get on this next trial. You so deserve it, because your courage is phenomenal. I read the following quote the other day. It must have been written especially for you. “Courage is looking fear right in the eye and saying ” Get the hell out of my way. I’ve got things to do ”
    Anyone can give up. It is the easiest thing in the world but to hold it together when everyone else would understand if you fell apart….. thats true strength. Lots of love Christine

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  6. Tina Moran says:

    Good luck with all aspects of the trial Jane. Christine’s post is wonderful. Thinking about you lots and sending much love and strength. Xxx

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  7. Sarah says:

    Hello my lovely, been thinking of you lots and sending you all my positive vibes. Keeping everything crossed that you’ve got on the trial and you get the drug, not the placebo. Hope you’re feeling more positive and have ‘got back on the horse’. I know you can do it, you are one of the most courageous and inspirational people I know. Stay strong and dig deep. All my love Sarah.xxx

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