BERT2011 (Bugger, Estrogen Receptive Tumor)….

Metastic breast cancer at 38

The calm before the storm

on February 12, 2015

So here I am.. The night before my last chemo session ( for now… I must stress there will no doubt be more)…

I feel strangely calm tonight, I’m Very pleased that tomorrow is my last session for hopefully a few months, this chemo has been far tougher to handle than when I had it in 2012, and I didn’t know until Wednesday when I saw the Prof that apparently the drug I’ve had this time (Taxotere, also known as Docetaxol) is probably one of the hardest chemo drugs I’ll face.

I’m aware I haven’t posted much lately so I have quite a lot to tell you.. Re treatment, results and next steps… Sorry I’ve been quiet I’ve had my head down trying to concentrate on me and getting through this. So, an update where shall I begin…

Side effects of Taxotere … The worst one… Is the Neuropathy, I’ve linked this to explain the symptoms.. But basically it’s a permanent pins and needles/numbness in my fingers and toes.. My right hand and foot are the worst.. So much so that that it’s caused me to be Even more clumsy than I normally am.. I’ve bashed all the finger nails on my hands, so much so that All the nails on my right hand have fallen off.. Horrible!!! So Neropathy… Proper PANTS!! The prof tells me that is should ease post treatment so I’m really hoping so as I, thoroughly fed up of it.

Hair loss… Well this ones I’m pretty happy with actually… I have done the Paxman cooling cap here and I have to say I’m IMMENSELY impressed, my hair has thinned but I’ve still go a full head of hair, no bald spots and it has made such a difference!! I don’t feel like chemo girl.. No one is staring at me, I don’t get the sympathetic “ahh bless she’s having chemo” looks… It’s meant an immense about to me, I now don’t have to start all over again trying to grow my hair back…. My HUGE thanks here go to the Weston Park Hospital Charity who help to provide funding to these caps… Thankyou x

Other side effects… Well there’s the side effects from the steroids.. I hate hate hate these! I have to take them for 3 days around my chemo delivery day and have it intravenously on the day too… It’s Hateful stuff. Makes me very Hot, flushes, massively grumpy, angry, mood swings (sorry Mum &Dad) and had given me a round face and ridiculous fat appetite..serious diet starting soon! As for the other effects these follow the chemo norm.. Very tired, sick for the first week, weak.. Loss of concentration, forget what you are saying and lately chemo brain which I alike to baby brain… Scattered!

Ok… Crap side effects aside…time to officially share some good news… In Decemeber I had scans to See how it was going and if chemo was working… Good news I can still barely bring myself to believe… The 3 tumours in my lung are no longer showing.. So to my understanding have for now disappeared, and the 2 left in my liver are extremely small… So for now Fabulous news!!

This leads me nicely onto..what next… Well after treatment tomorrow I will go for a CT scan of everything in the next couple of weeks to give us a Benchmark to check against over the coming months, I’ll then be scanned every 3 months so see if the chemo is still working in my system and holding the progression of my diesease, this means no new tumours and the 2 in the liver don’t grow. I will continue my Denusumab injections to strengthen my bones and I will go back on the Faslodex injections… Oh poo!! These hurt… Must be done though.

So that begins me uptodate..and I thank everyone for all their constant support and well wishes.. 😘😘

Bring on tomorrow and starting my recovery….time to try and start enjoying things again


12 responses to “The calm before the storm

  1. Mum Dad says:

    Will be thinking about you all day tomorrow. We are so proud of our very brave daughter. X x x x

    Like

    • Ken Walker says:

      I read Janes’ story on the Mail online.

      Are you really Janes’ parents? I don’t know how to contact her but perhaps you can help me.

      There is hope for Jane – ask her to research Medical marijuana online.
      19 states in USA now legalised Medical Marijuana – because it works!

      As Dylan Thomas put it: –
      Do not go gentle into that good night,
      Old age should burn and rave at close of day;
      Rage, rage against the dying of the light.

      You can contact me at kmwalker53@hotmail.com

      With love from a stranger,

      Ken Walker

      Like

    • Brad Myers says:

      Hi Jane, not sure if you remember me from the days at RMG?

      I only discovered this blog last night.

      You are a modern inspiration to all. Well done, and keep going.

      Love,

      Brad

      Like

  2. Tina Moran says:

    That’s such good news Jane. You are as amazing as ever and I do so hope that your recovery continues to be successful. Spring is round the corner, a new start for your enjoyment of life. Lots of love (and to your Mum and Dad). Tina xx

    Like

  3. Chris Ellison says:

    Hi Jane – that is fabulous news.

    I hope that you and Tia are settling into the new house x

    Like

  4. Michael Spencer says:

    Thanks for the update, Jane. Although I’ve not been in touch recently, you’re still in my thoughts and your positive perspective on things is a real inspiration for those of us whose problems are tiny and insignificant in comparison.

    Keep up the blogs, hope everything continues to move in the right direction.

    Best wishes,
    Mike S
    X

    Like

  5. Diane Cowen says:

    Oh Jane you are one brave women, you have been through so much at such a young age but looks like you could be through the worst now, I’m really happy that the tumours have not grown any more, thinking if you and your family xx

    Like

  6. Sarah says:

    Hurray you’ve had your last chemo!!! Hope you’re not feeling too rotten. AWESOME news re your scans in December….woop woop!! We’re really looking forward to seeing you next weekend πŸ™‚ lots and lots of love xxx

    Like

  7. Gill Musson says:

    I read your story in today’s Rotherham Advertiser, Jane. I wanted to tell you just how moving it was, but mostly to say what a brave and inspirational person you are. I sincerely hope that your recovery continues and that you enjoy many more years of inspiring others to overcome their own obstacles. Thank you for sharing. My very best wishes to you. Gill Musson

    Like

  8. Ed Austin says:

    I saw your story in the Daily Mail. You are an absolute inspiration and when you say “A day spent sat around crying and feeling sorry for yourself is a waste of a day” isn’t that so true.. best of luck and wished.

    Like

  9. Natalie Dodwell says:

    Hi Jane, I’ve just seen your daily mail on my news feed on Facebook. I remember you straight away from about 14 years ago I use to do your hair at weldon hair. All I can say WOW! You did this. How amazing are you! When my friends say to me I can’t wait, I always thought you should every day till the day come because life is too short. I really hope you live for longer then 10 years. You deserve a lifetime in your amazing new home. xxx

    Like

  10. Richard Walker says:

    Hi jane, what an amazing lady to go through such a terrible illness and still have the strength to build a house, you are an inspiration and I wish you all the best of luck for the future. X

    Like

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